The One in Which I Talk About the Goodness in the World...and the Essentials

Yesterday, Steven and I were taking our (almost) daily walk up and around Communications Hill. It was chilly (by California standards), and I was bundled in my scarf and Steven was protecting his bald head (brrrr!) with a beanie, but we were still holding hands the whole way - all the way up and all the way down the 3 mile trek, as we always do.

As we reached the ~1 mile mark, he turned me and said, "This is the best part of my day, just walking here with you." And I said, "Me, too. Me, too." and he kissed my hand. With a lump in my throat and tears in my eyes, I concentrated on the feel of his hand in mine, his lips on my fingers, and the sound of the crunchy autumn leaves under our feet.

Me, too. Me, too.

We were at one of the last traffic lights, and I could hear from the chime in his pocket that Steven had received a text. He's been trying to simplify his life - pare down to the essentials. Part of his strategy is to have stricter control about when he does and does not check his texts, emails, notifications, etc., so he was tempted to let it go. I admire that. But with Thanksgiving quickly approaching and the coordinations for all the family travel, etc., I urged him to stop and check it. Even in the glare of the sun, I could see by his expression that it was not good. And then he shared with me:

He has a core group of guy friends that dedicate twice a year to get together. They geek out about food, wine, life, and just enjoy each other's company. One of these men's son (only 16 years old) had passed away suddenly. Neither of us had ever met this boy, but that didn't matter. It could have been anybody's son or daughter...anyone's tragic loss. The rest of the walk home was marked by mostly stunned silence as we both tried to process what we had just learned.

We didn't have very much time when we got home to prepare to leave for my radiation treatment, but one of things that I always do is make a new paper ninja star and write on it  - things to carry me through the experience. It seems like a silly ritual, but it helps me focus and remain calm during the treatments.  It's the MIND/SPIRIT part of my holistic approach to recovery & survival.

We were so stretched for time, though, that I had to grab the paper, pen, and scissors, and create it in the car on the way to the radiology office. But I knew just what I had to do:

Never forget the most essential: LIFE. 

During my treatment, I clutched that ninja star across my chest and visualized our morning walk, hand in hand, and the feel of Steven's lips on my fingers and the sound of the crunchy leaves.

When we got home from my treatment, I received a text from a coworker/friend. (Okay, if you must know, he was like my "work husband" for ~9 years. Love you & miss you, Todd! <3) ... He had a package to deliver to me after school.

It turned out to be a notebook filled with letters and notes from some of my former students. It was passed around the local high school, so these were kids from my class of 2009-2011 who wrote me messages. Letters and notes filled with compassion, encouragement, and hope...and some misspellings (for which I accept no responsibility!) #freepass

It was so overwhelming! I wish I could post every one of them on here. I am so touched. I think I will write about this book in more detail later. These kids deserve it. I just wanted you to have some small feeling of what an amazing gift this was for me. Any teacher would understand. It's one of those jobs where you're never really sure what kind of an impact you've had.

I curled up in my bed for a little nap and cried as I read...good tears  - of joy and gratitude.

and then...
(I know! Can you imagine?)
and then...

Steven brought home a package that was shipped to the winery for me. It was an unassuming white box, but when I opened it, this what I found, folded lovingly inside:

It is toasty warm and Tess-approved.

It is this beautiful crocheted blanket from Project Chemo Crochet. [One of the secrets that no one tells you about being a Cancer Fighting Ninja Warrior is that you are almost always cold because of the treatments and medications.] Please click on the link to learn more about this amazing project. I think I need to learn how to crochet, so I can pay it forward...

The letter inside said:

"...We know that there might be times during this journey when you might feel cold, alone, tired, and scared. Our hope is that during those times you can feel our arms wrapping you with the love that went into every stitch.

Cancer's a bitch, that's why we stitch. Stay strong!" 

The thought of people from all over the U.S. and Canada stitching these squares.. <more good tears>
I feel your love!

I don't know why terrible things happen to people in this world, and I'm so sorry if you are going through something tragic right now.

So, today, it felt right for me to acknowledge:
I alive,
and I'm so, so grateful for all the good there is in this world.

Since I almost certainly won't "see" you until Friday, I want to wish you a day filled with friends, family, love, and LIFE.

P.S. I cry at the littlest things now, so I can't even begin to imagine how much of a blubbering idiot I will be when I have my whole family together. But they will be good tears!

The One in Which I (Loosely) Explain Ninja Warriors and Why I Think I'm Eligible

Thanksgiving Day is nearly upon us, and I know many people are writing with excitement about the upcoming debauchery celebrations of gratitude. I'm going to buck the trend right now because:
1) In 3 more days, I'll surrounded by some of my closest people in the whole world, and if I start thinking about right now, I'll probably cry for 96 hours straight. And I know there'll be enough tears between us all on Thursday to end the drought in CA. (Hey, somebody get on that! I came up with a brilliant plan to end the drought!)

and

2) I woke up with something else on my mind, and that's how these blog posts originate.  It's a very complicated process. You see...I think about something, and I think about it some more, and then I start writing.

(Hint: It's not complicated at all.)

Lately, I've been thinking about Ninja Warriors. For some reason, I zeroed in on that image early on in my cancer fight and have stuck with it, but truth be told....I really didn't know very much about them!  And as a self-professed history geek, that's not acceptable. Who were the original Ninja Warriors, and does it even make sense to call myself a MFBCFNW?

Okay,  just to clarify, I'm talking straight up Ninja Warriors - not Ninja Turtles or Power Rangers or any of the other video game/comic NOT REAL characters out there. (Not that there's anything wrong with that, but we're not talking about Comic-Con here.) And I don't even mean American Ninja Warriors...Although they are real and exceptionally badass.  Side note: If you are luddite and haven't seen this video clip of the first Female American Ninja Warrior to qualify for the National finals, you are REQUIRED to watch this video clip at some point. You can wait and come back to it, but trust me. She is a badass athlete!

I knew that Ninja Warriors were not Super Heroes. And I knew that they really had no Super Powers. (So, I was on the right track.) I did some research on real Ninja Warriors. There is a LOT that I'm leaving out....and forgive me if I get some facts not exactly right! #freepass! (Like I always say, "Google That Shit!" if you want to know more!)

But just a little backstory for you non-history geeks who aren't gonna google shit: References to Japanese Ninja Warriors date back a 1,000 years, although evidence suggests that they didn't officially start to train them until the ~15th century. The ninjas were real people, fighting real wars, but they were different from the samurai because samurai conducted themselves by a strict set of rules and standards of honor. Ninjas specialized in covert operations and mercenary tactics and general badass-ery. (That last word might not be a real word...but it should be.)

But I want to focus on a few things that make me feel like I am qualified to call myself - and anyone who has/is battling cancer - a Ninja Warrior.

• Ninja Warriors are stealthy. The legend persists that ninjas wore all black clothes including a black mask. But Ninjas would really wear whatever they had to in order to sneak up on their enemy. Actually, mostly they wore navy blue because it didn't contrast so starkly with moonlight. True story. Cancer patients also have to adapt their attire to prepare for their fight.

So, yoga pants and track jackets are a good choice.

Hospital gowns and bandanas are even sneakier.

It's important for the technicians to have easy access to whatever they need to administer your treatment. In my case, that means nothing obstructing my head or neck, so they can easily clip on the Mask of Horror. I don't, however, have to wear a gown, so yoga pants rock for me!

Those cancer cells would never expect you to be as BADASS as you really are in those outfits!

• Ninja Warriors did not always work alone. They were trained in carrying each other on their backs or creating a human wall to lift one up to greater heights. Cancer patients have a team of doctors, nurses, technicians, family, and friends fighting along with them. But now we're getting into Thursday's theme, and I don't want to start crying now. So, I'll leave it at this: In the Ninja Warrior world - NO ONE FIGHTS ALONE! 

• Ninja Warriors used a wide array of tools to reach their goals. While fighting cancer, whether it's chemotherapy, radiation, exercise, nutrition...cancer patients know we have things to help us reach our ultimate goal. Let's hear a: "Woot!" for modern medicine...and a return to common sense healthy habits like avoiding toxic chemicals in your home and food!

• In the movies, t.v. shows, and computer games, Ninja Warriors mostly rely on their physical strength. But in reality, Ninjas greatly valued another key to success: their mind.

Heishichiro Okuse — perhaps the foremost authority on ninjutsu and the author of four books — wrote his last work on the subject, Hidden Ninjutsu: The Secret Thoughts and Strategies of the Ninja. According to him, they regarded nothing as impossible and scientifically applied brain power to every problem they encountered. He regards the nonphysical aspects of ninjutsu as the key to a successful career.

I have taken to making paper ninja stars, which can't do much physical damage except if you throw one of them into someone's eye. (Kiddies, in case this is not clear: I'm specifically saying NOT to do that!) In that case, they would really hurt. OWIE! My ninja stars represent things and people that I rely on to help me - even though they can not physically be there at the moment.

They're a mental reminder of all that I have around & within me,
and I hold them close to my heart during all my radiation treatments.

I guess I first believed I needed to be a Ninja Warrior because Brain Cancer is the scariest, most formidable, ...and (#nobullshit here) deadliest enemy that I have ever faced. And I have no choice. I can't turn and run the opposite direction, and it will just go away. I can't go to my "Happy Place", and all will be restored to normal (although a nap is a beautiful thing). Steven and I are making decisions that are life or death. And it's scary as hell. We have to believe that nothing is impossible and scientifically apply our brain power to every problem we encounter.

The only way to defeat it is to go through the pain, through the fear. Failure is a possible outcome, but quitting is not an option. I have to be a BADASS. I might not look like it in my yoga pants and track jacket, with half my hair fallen out...but that's just part of my stealthy master Ninja Warrior plan. And there is not evidence (that I could find on the interwebs) that Ninja Warriors never got grumpy and/or cried.

And that my friends, is why I believe Cancer Patients & Survivors have earned the right to call themselves Mother Fuckin* Ninja Warriors. 

*MF is totally optional because some of you have boundaries about cursing that are different than mine. And that's totally fuckin' okay! #freepass #nofilter <fist bump!>

Love, 

June Xoxoxo

One Grumpy Ninja

I haven't felt like writing a blog post the past few days. In fact, the last 24 hours, I haven't felt like doing a whole lot of anything -except curling up in a ball in my bed and alternating between napping/sleeping and crying. I don't know what actually pushed my over the edge - half of my hair falling out in huge clumps in my comb, or just starting the fourth week of my chemo/radiation treatment (and the prospect of starting steroids due brain swelling),  or the news that my master teacher when I was a student teacher (and all around amazing woman) found out she had pancreatic cancer this week...but sometimes it's all too much,

 and I just want to say FUCK, FUCK, FUCK, FUCK, FUCK ......

over. and over. and over again.

(I mean, way more than usual, even for me on this blog.)

I was a very Grumpy Ninja.

(Of course, this image exists on the internet.)

Side note: I was very curious about how many "fucks" I could write if this were a movie script before it would be rated R...and it's not as clear cut as I thought (see Wikipedia article "Language" section). I mean, I have not intention of competing with the Wolf of Wall Street with 506 fucks. That would bee excessive in one blog post, don't you think? But I can't guarantee that I won't eventually hit 500+ F words cumulatively...

So, what's a grumpy ninja to do?

Reaching out to fellow Ninja Warriors really did help. I texted with another Ninja Warrior who told me it was okay to take a reprieve from Warrior mode - and prescribed crying, napping and movies. I got wonderful hugs from my master teacher AKA Master Ninja Warrior that also helped. I went for a walk in the rain with Schmoopy and had a good crying session. I watched the first two episodes of Vicious in bed (thank you, Pamela Hawkes!), followed by a warmderful nappy, nappy...

And then I received THIS in the mail (along with some beautiful sparkly bracelets):

A million thank yous, Sharyn! How did you ever know? 

So, I'm sitting here on the sofa, wearing my new classy t-shirt, drinking tea, and watching The Wizard of Oz with Schmoopy, my Brother, and the puppies. And feeling much better.

See! Ninjas can be warm and fuzzy, too!

But really....FUCK CANCER. 

And don't think I won't go all ninja on your ass the next time I see you!