Wednesday, April 6, 2016

The One in Which We are Untethered Out from Land

When I was young, I sometimes thought that I was a little playing piece in a humongous world/game and the inhabitants of that world would watch my life and make changes to my destiny, just to see how I would react ...and this was WAYYYY before the movie Truman Show was written and produced, so I would say someone ripped me off and demand royalties or something...but I think many of us had that idea. In fact, I vaguely remember reading and talking about this phenomenon in a philosophy class in college. I think it has an actual name and shit...anyway....I kinda feel like that way lately. Well, let's look at my recent Recurrence that followed a wonderful series of events. <--- click here if you missed that one. But if you want the cliff notes version: blah blah blah...all these wonderful series of events happened and then WHAMMO! after a MRI, I found out my disease was progressing. It was almost like someone was playing with me or something.

This past week, I had another lovely series of events also [not to be ocnfused with the young adult novel Series of Unfortunate Events - that is defnitely NOT a bunch  of lovely series of events. (Talk about truth in advertising!) By the way, I strongly recommend that series for your kids, between about 10 -14 , but it's bleak and dark at times in a Roald Dahl-ish sort of way.)

ANYWAY, my last week had a series of some lovely, lovely bits in it. So many, that I can't even write them all, but for example:
some of our SKW Winery Friends & Family Circle generously offered for us to stay at their beach get-away, where Schmoopy and I were able to stay for  a night and walk along the Pacific Ocean,

Walking to the beach.Not to worry. The temperature was gorgeous, but I'm always a little cold.
hand-in-hand, and, watch the waves crash on the shoreline as a few (crazy) spring breakers actual dipped in that f-f-f-reeeeezing water. {Kiddies: a little lesson: Pacific Ocean - cold,umm....pretty much all the time and Atlantic Ocean - warm and swimmable in March] When we reached the end of our walking trail, Steven exclaimed, "I think this is Rio Del Mar Beach! My grandparents owned a shop right here....called Pixie Plaza...Right about....THERE!" And there was the place, name changed to Pixie Deli, but still kind of a kick, don'tcha think?


That's a good little bit, right?

That weekend, I had my 5K Run, which I have also written about and you can read more about it here<--- or cliff notes version: I felt AWESOME, participating in my first run/race since my diagnosis 19+ month ago!

I've run marathons, half-marathons, 10K's, but this one kicked ass! It was only 3.1 miles, but it was a big "FUCK YOU< CANCER!" that felt so goooooood!

This was some joyous bits right there!

Sunday, most of my kids were be able to drop by on Sunday morning, April was able to make it with our granddaughter, Autumn. What a treat! 




Cuteness alert: Autumn is walking to Grandpa..or....

 and ...a different configuration of our family,  but still would probably be almost a "quorum" dropped by last night for dinner. Happy, Happy, Joy! Joy!
Sun, and vino, and a walk through the vineyard.
I'll stop posting pictures because it would be obnoxious to go and go on...and you've got the point already. This past week was filled with so many "Joyous Bits" and then....

Monday was my visit with UCSF Day, including the first MRI since I've started my new clinical trial.Fasting blood draw (put in the IV then in anticipation of coming back for my infusion, assuming the Dr. gave the okay), MRI, blah, blah, blah, Doctor's visit to review the MRI scan and blood results.

THWUMP! <---Ninja being punched in the stomach again. The words we wanted to hear: "stable" was not uttered. Instead, we heard "progression of disease" and "recurrence". Due to that, I am no longer in the trial.

Some of you may wonder where the "Out from Land" moniker came to our homestead from Steven. It comes from an Emily Dickenson poem:

Exultation is the going
Of an inland soul to sea
Past the houses, past the headlands
Into deep eternity!
Bred as we, among the mountains
Can the sailor understand
The divine intoxication
Of the first league out from land?


(You'll have to ask the Lit. major for all his connections and meaning.)


When I think about it...I try to visualize us on a ship and picture us looking out at the green, green hills and valleys of vines....like an ocean. If you gaze to the horizon, you can see the sunrise and sunset, but it's magical to be surrounded in this space. Am I lost? Am I lonely? No. There's the horizon and all that between leading us there. And yet we're untethered at the moment.

Maybe you askAm I okay right now? I don't know where we're going next. We have a lot of research and talking,  thinking to do. 

Picture me on the deck of that ship  Listening to the water lap "thwap" thwap" "thwap" against the hull of the ship .- looking out into the horizon for those "joyous bits" in this series of events they call LIFE.

P.S. If there really IS a humongous world where somebody is playing me like I'm a game piece...move on to something new, okay?

8 comments:

  1. Your ship analogy immediately made me think of this, and then start crying. I love you and Dad.

    SONNET 116

    Let me not to the marriage of true minds
    Admit impediments. Love is not love
    Which alters when it alteration finds,
    Or bends with the remover to remove:
    O no; it is an ever-fixed mark,
    That looks on tempests, and is never shaken;
    It is the star to every wandering bark,
    Whose worth's unknown, although his height be taken.
    Love's not Time's fool, though rosy lips and cheeks
    Within his bending sickle's compass come;
    Love alters not with his brief hours and weeks,
    But bears it out even to the edge of doom.
    If this be error and upon me proved,
    I never writ, nor no man ever loved.

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  2. April made me cry--in a very good way. Perfect. You just plain awe me, June. The gut thwap makes me outraged with the stupid universe. But you, you don't waste any time on bullshit. Without denial or pollyannaism, you distill and then offer up a clear, shimmering cup of life from what would be a flood of confusion for most people. You are diamond. You're also greatly loved, whether you feel like being a diamond on any given day or not. If there is anything I can do to support you and yours, my sword is yours to command.:-)

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  3. Yay for the lovely bits. You know my reaction to the other news.
    And as always, I'm amazed at how similar we think. I wonder if it's the non-religious thing? Not really having 'faith' but thinking "Hmmm is there a big grid out there with my name on it and it has check boxes on it for certain things on certain days?" If so, I'd like to uncheck 'that' box for you! Damnit!
    It's a crappy day here but I'm gonna send you sunshine, rainbows and dancing unicorns for your 'bits box' :)
    XOXOX

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  4. Thanks for sharing the good (great) and bad. Your honesty is amazing. I'm sorry you have this bad news and am sending you and Steven hugs and prayers.

    PS - I'm glad to see the hat is getting some use. It looks fabulous on you and that photo made me smile.

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    Replies
    1. I love that hat! Wear it all the time! So cozy and warm...and cute@ :)

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