Thursday, February 19, 2015

The One in Which I Thank the Carson Family & Say Good-bye to One of Our Own


In 1994, we moved into this house, and our oldest daughter, April, started attending the neighborhood school, Rachel Carson Elementary. At the time, there were roughly 600+ students going there  - (Today, there are about 400 students!) -  so if you're really curious about why there were so many, Google that Shit: "SJUSD" and "court ordered bussing" It's an interesting story, but for another time...

Every year, the kids endured a First Day of School picture on our porch. This one was from Katherine's first day of kindergarten since Sara isn't in uniform yet.
The students wore/wear uniforms, so it looked like a sea of green and blue when I went to pick  her up in the afternoon with my three littler ones. As we walked by the front of the school on our way home, the principal said, "How was your first day, April?"

I remember thinking at that time what a special thing it was - to remember a child's name - (one child in 600!) - on the first day. How meaningful that was to her - and me! But that's the kind of school Rachel Carson is - a real FAMILY of staff and parents and children. I have been there ever since: all four of my children attended Carson, and I began working there - first as a parent volunteer, then a part-time computer lab instructor, and eventually as a full-time teacher.  And it's been a privilege.

I have never felt more honored to be a part of the Carson School Community than I felt last Friday night, February 13th, when they came together for a Valentine's Day Dance  - that benefited me and my family! It was a lovely event, and I was honored and overwhelmed. There was dancing, and a photo station, food and raffles baskets. And the kids were so pumped to have an opportunity to get "spiffied up". They were adorable!

Thank you to all the parents, teachers, staff, and students 
who made this so special!

I'm not going to lie - I was anxious about this event because it was a mixture of present day students  (read: young) and "old" students (now in high school). I thought a lot about what I was going to wear because I didn't want to freak out the little ones. "Who is that sick, bald lady, and where is Mrs. Mirassou?"

I wanted them to feel comfortable coming up to me and walking way with a happy picture in their minds of Mrs. Mirassou. After some consultation and shopping with my daughter, I ended up with my purple wig with a white flower clipped to the side, a bright pink sweater and black & white scarf with hearts all over it in honor of the holiday. I know it sounds pretty "clown-like", but I'd rather the little ones view me as approachable and funny looking than sickly and scary. I guess it's the elementary school teacher in me.

As far as I know there are no pictures of this - I didn't take any. Kiddies, I've realized that when you've been the "unofficial photographer" for a really long time, no one steps up unless you specifically ask them! DOH!

The older/high school students were well-aware of the "real deal". In fact, I'd already received a precious gift that one of my former students (Thank you, Emily Cole! <3) had coordinated: a notebook that she'd passed around the high school a couple months before filled with messages of hope and love and gratitude.


Being a teacher is somewhat like being a parent. it's not like making "widgets". If you're lucky, you get to see/hear the results of what you've accomplished many years later. As a teacher, sometimes you never know the effect that one small thing may have had on a child - good or bad, really - and that can make it very daunting.



These heart-felt messages in this notebook really made my heart smile as I read through them.  
But helpful tip: all children will tell you that you were "their favorite teacher"- So sweet! (Sorry to ruin it for you new teachers out there! haha!)

One of my favorite things about teaching is having the opportunity to have siblings come up in the grades so I have multiple children from the same family. As a mom of four, I know how different they can be and yet how there are shared experiences that leave an indelible mark on them - like having the same fifth grade teacher! 

At Friday's event, one little girl shyly scooted up to me (with some prodding from her mom) during the night to hand me a little note. I had had her brother several years earlier, but hadn't had the pleasure of her in my classroom. She held in her hand a folded up "Super Star" ticket, obviously a scrap of paper she'd found to write an impromptu message that she wanted to share with me.

Look past the spelling/grammar...this is an example of the pure light and innocence of a child, straight from the heart.
 So, Friday night, I got to visit with students - young & old, parents and staff members and watch the magic that is Carson School. I wish I could have stayed the whole night long, bopping on the dance floor until lights out, and greeting every single person who attended.

Unfortunately, that was the end of my first new cycle of chemotherapy with the higher dosage, and I was/am still trying to work it out. (It's almost a week later, and I will don't feel 100% yet....)

Please know that in my HEART, I was there the whole time, ....and I am so, so grateful for everything you did!
____________________________________________________________

Finally, I want to say good-bye to one our very special Carson Family members.  Jeanne Mullins was a first and second grade teacher at Carson for many years. Not only did two of my children have her as a teacher, but she was my Master Teacher when I was student teaching to get my CA Teaching Credential.


I learned so much in her classroom -  not just about the ins-and-outs of "teaching" -  but about creating an environment in where children feel important and loved. That extended outside the classroom into every area of Jeanne's life. You will be missed, my friend.


Sunday, February 15, 2015

The One in Which I Reveal My Valentine's Gift


I've been following on Facebook, Twitter, and Instagram as people (read: women) show/tell what their Valentine's Day Gifts were. I thought I'd share mine:

Okay, it's probably not a big secret at this point...



My Valentine's Day Gift(s) 2015
A Man Who...
  • Stroked my hair back from my face and placed tissues under my chin as I rode out a strong focal seizure, whispering in my ear, "That's right. Relax. You're doing great..."
  • Strode along the hospital hallways, then the neighborhood sidewalk, and The Hill - always at my pace, as we talked or not talked - but always held hands.
  • Literally, talked me into breathing again when I had a full-on panic attack after taking a new medication.  (If any of you have had a panic attack in your life, you know scary that can be.)
  • Was my voice when I could not be my own voice in doctors' meetings and social gatherings...
  • And had the patience to listen when I started to find my own voice, and know when to talk and when NOT to talk (most of the time)
  • Somehow manages to keep this boat afloat despite the rocky seas - bill gets paid, appointments are made, medications are refilled...
  • Has stood by my side the last four months during the most challenging time in our lives -
  • Doesn't focus on my freaky, semi-bald, Alien Crop Circle head, but instead looks into my eyes and says multiple times a day, "You know I love you....I mean, I really love you."
And I believe him. Because only a really, really special Valentine could gifts like that. And yes, I'm fully aware of how lucky I am.

My Schmoopy!

Wednesday, February 4, 2015

The One in Which I Show You a #NoHairSelfie in Honor of #WorldCancerDay


Today, I had planned to write a pretty frothy blog about the many hairstyles of June A.C. (after Cancer), as Steven and I have taken to calling it. Kiddies, there's a B.C. and A.C., an invisible line drawn through out lifelines now, as there is for any Cancer Warriors out there. I wish the AFTER Cancer part meant "After Cancer was GONE", but "it is what it is", right? 


Guess what? It's #WorldCancerDay! Which does not sound nearly as much fun as #WorldSkipWorkDay or #WorldSandBetweenYourToesDay, .... Bummer. Sorry. It is an important subject, and it's bitchin' that they have a day dedicated to all cancers - not just the one which is covered in pink ribbons and glitter...(The designated color for brain cancer is gray...but I'm not bitter about that at all...)

Yes, it's #worldcancerday, but I discovered a loophole that allows me to go ahead with my plan while (hopefully) still maintaining the intention of today's designated honor!

As PART of this day, there's a very special hashtag: #nohairselfie. You can shave your head and share it on social media with that hashtag to raise awareness. They even have an app so you can "virtually shave and share" (Oh, the modern world!You crazy kids and your technology!) It's a Canadian campaign, but it's WORLD Cancer Day, Not National Cancer Day. and Newsflash! The internet is international!

And/or you can donate $$ to support research for a cure, etc. <---which I personally think is the way to go, but I'm not going to be pushy here. See links at the bottom of the page for suggestions for donations.
Click on the link if you don't believe me!
So, this little coincidence is totally cool AND saved the day, because it allows me to stick to my original plan to write about ... 
June A.C. and her many hairstyles! While still supporting World Cancer Day!
Win-win!!!

But let's get down to some serious business, shall we? Hair. When I was diagnosed with brain cancer, I had long, thick, wavy hair - the kind that took 45 minutes to an hour to wrestle under control when we got ready to go out. There was shampoo and conditioner, and styling cremes, and a blow-dryer and straightener AND curler. Yes, indeedy, ladies and gents! Women sometimes actually straighten their hair before they curl it. Back me up on this, Ladies! Sounds crazy, but it's true.

And when I was going to start my treatments, Donna (The P.A. who ran my Chemo Class), kept saying that the chemo I was taking would NOT cause my hair to fall out. The radiation team DID say that I was going to lose my hair, but "only in the places that I was receiving radiation treatment, so I probably would have "patchiness" .

People asked me how I felt about losing my hair in the process, and I always said the same thing: "My hair is the LEAST of my problems at this point." Which is true when your dx is Stage IV brain cancer. So, I didn't give my hair a lot of thought, honestly.

I had NO idea what that was going to look like, but I knew I wanted to be proactive and cut off a lot of my hair to 1) prepare for the inevitable and 2) donate to Locks of Love. So, I did...

And prepared for the "patchiness" about 2-3 weeks into radiation treatment.

Yeaaaa... about that "patchiness"?  This is what "patchiness" has meant in my case...

I think this counts as a #nohairselfie, don't you?

Excuse me for being a little nit-picky here....but that's not what I call "patchy". That's some Alien Crop Circle shit up on my head. But I'm not going to shave-shave all of my head. Not because I'm vain.... BAHAHAHAHA! <wiping tears from my eyes!> Do you not just see the pictures I have shown you??? Vain? <snortle!> The reason I'm not going to fully shave is I have heard that it is a 1) a huge pain in the ass to keep the smooth shave maintained and 2) you cut the crap out of your scalp using a regular razor instead of an electric one.

OH, but before I forget: huge props to my husband and brother who actually DID shave their whole heads, voluntarily, in solidarity with me:

Sorry if Steven's t-shirt offends you. #sorrynotsorry #fuckyouyoufuckingfuck #juneisfeelingfeisty
 So, for now, I'm using an electric razor to keep the patch of "sod" short while my little seedlings start to grow in. That's about what it looks like right now. I only shave that pathetic little patch in front - poor thing - so that it doesn't stick out when I wear a wig or hat.

My Options:
I have a wonderful collection of hats - thanks to some very generous June's Warriors:


If you happen to walking Communications Hill at the same time as Steven and me, you probably recognize these. Or if you stop unexpectedly at my house. Or basically 90% of the time. Hats rock!

If I'm getting fancy, I have my Fun Wig:
What better excuse to have purple hair???

or my more "Sophisticated Look":

This is a Raquel Welch Wig - which even *I* had to Google because I knew her name but couldn't think of one thing she had been in...sorry, Raquel. I like the hairstyle, though!

But I think my favorite of all is the hybrid Raquel-Tigger Look, which I only pull out for special occasions, OBVI! Like my head is cold. Or Tigger is feeling bouncy...fun, fun, fun, fun, fun!


So, if you're having a crappy day and sick of the snow or your boss is being an asshole... or WHATEVER is getting to you today...I have a gentle suggestion for you:

Maybe go to nohairselfie.com and download one of those apps and virtually shave your head. Have a good chuckle and post it on twitter, facebook. and/or instagram. Don't forget the hashtags: #nohairselfie and #WorldCancerDay.

And think about how it's just fucking hair...or snow ...or an asshole boss...

and it's not CANCER.

Because Cancer? It really sucks. And we always, always can find something to smile about. But we really need to support research to find a cure.
_______________________________________________________________________________


There are a ton of places to donate to the cause. Here are just some links to get you started:

American Cancer Society

Stand Up To Cancer